Thursday, December 10, 2009
So, after being off the Rocephin for ten days, my levels finally returned to the normal range. I developed a horrible skin rash and blisters under the dressing for my picc line. The nurses finally resorted to using Betadine and leaving it open with no dressing but guaze. It is finally getting tolerable after a total of 15 days. It is so weird how itching can drive you to derangement, I have nearly ripped it out of my own arm several times now just to try and alleviate the mental anguish caused by the desire to scratch til I bleed. So, I started IV Doxycyclene a week ago. It is a much less easily tolerated medication. (But thank heavens no major burning itching) So far I have had extreme nausea every day accompanied by a major headache, achy joints and just general flu like symptoms. I am still getting a slight temperature in the evenings. A weird side effect that I'm not sure is from the meds or what, is a huge discomfort in my bladder. Every time I pee it is an emergency, seems I am no longer able to hold it. :) The first couple of days it was like oh my gosh I have to pee every 30 seconds literally. It burned to pee. I had a culture done for a UTI but so far it has grown nothing. I am able to wait longer in between trips to the toitey but still it is very urgent when I do. I am wondering if this could be yeast related. I know the candida has taken over my body. It is so hard to know if this is all worth it. I want to get rid of Lyme the thought of the little Burgdorferi swimming through my orafices is definitely a motivating factor, not to mention all the crappy side affects that come along with Lyme. Most days though, I find myself asking.... Is this worth it? I swear I was healthier with Lyme. (and I was truthfully) My only hope is that at the end of this the Lyme will be eradicated and I will have health and vitality. I realize that I need to lean on the priesthood more. I have to exercise faith that this will heal me my body needs as much help as it can get. I know the Savior has experienced the same things I am going through and that he knows how I feel. I have to give it over to him and rely on him to comfort me.
uncurable burning itchy crawling
So I took Rocephin for four weeks. Each time I administered the meds I endured a horrible burning sensation crawling throughout my body. I also had a shaky sick feeling that led me to desire to get out of my own body. It was torture. For a week it got so bad that I could no longer sleep. I was averaging 1.5 hours sleep a night. Finally the time to check my levels came. FREEDOM.... My body stopped producing Bone Marrow, I would say some time during the torturous sleepless week. My WBC was almost non existent. I was told to expect to have to have a transfusion and to discontinue meds IMMEDIATELY! While I was freaked as can be I was so thrilled to stop the Rocephin I wanted to have a party. Luckily it was my moms birthday so we kinda partied. I looked like something out of a sci-fi movie with my mask and blanket at the movie theater watching Twilight. I stayed off all meds for ten days.
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